Health On the Net Foundation (HON) is a not-for-profit
organization founded in 1995 under the auspices of the Geneva Ministry of
Health and based in Geneva, Switzerland. This came about following the
gathering of 60 of the world's foremost experts on telemedicine to discuss the
growing concerns over the unequal quality of online health information. The
unanimous conclusion of this gathering was to create a permanent body that
would, in the words of the program, "promote the effective and reliable
use of the new technologies for telemedicine in healthcare around the
world". The HON Foundation became one of the first organizations to guide
both lay users and medical professionals to reliable sources of health
information in cyberspace.
Mission
The mission of the foundation is to guide the growing
community of healthcare consumers and providers on the World Wide Web to sound,
reliable medical information and expertise. In this way, HON seeks to
contribute to improved health care through patient empowerment and better
informed health professionals.
Certification
HON Foundation issued a code of conduct (HONcode) for
medical and health websites to address reliability and usefulness of medical
information on the Internet. HONCode is not designed to rate the veracity of
the information provided by a Web site. Rather, the code only states that the
site holds to the standards, so that readers can know the source and purpose of
the medical information presented. The HONcode is voluntary,[1] which means
that webmasters and information providers can apply for HONcode certification.
Following this, the website is reviewed by a specialized team of health and
legal professionals. The HONcode certification is a dynamic state and is
extended every year according to site compliance. It is the oldest and the most
used ethical and trustworthy code for medical and health-related information on
the Internet.
The principles of the HONcode are:
1.
Authority – information and advice given only by medical professionals with
credentials of author/s, or a clear statement if this is not the case
2.
Complementarity – information and help are to support, not replace,
patient-healthcare professional relationships which is the desired means of
contact
3.
Confidentiality – how the site treats personal and non-personal information of
readers
4.
Attribution – references to source of information (URL if available) and when
it was last updated
5.
Justifiability – any treatment, product or service must be supported by
balanced, well-referenced scientific information
6.
Transparency of authorship – contact information, preferably including email
addresses, of authors should be available
7.
Transparency of sponsorship – sources of funding for the site
8.
Honesty in advertising and editorial policy – details about advertising on the
site and clear distinction between advertised and editorial material
Currently HONcode certifies more than 5,000 websites,
covering 72 countries and has been translated into 34 languages. It is used to
sensitize web publishers to the need for quality information and create
awareness in health professionals and so, help guide their patients to
trustworthy health information.
HON offers all users the trustworthy websites and support
groups, medical images and terminology, journal articles, and news through its
search engines MedHunt, HONcodeHunt and HONselect. HON also provides two
databases of trustworthy health information, one on eye diseases and the other
on general medical conditions. Provisu.ch is a database of reliable health
information on all eye diseases and is accessible by those with poor or no
vision through its variability of letter size and audio version.
Santeromande.ch is an extensive database, mainly directed towards the
French-speaking public of Switzerland and neighbouring France and provides
reliable health information, directory of registered health professionals,
medical centers or hospitals, medical associations and federal organizations.
Health On the Net Foundation was granted on 23 July 2002 NGO
status by the Economic and Social Council of the United Nations. HON also has a
partnership at the French governmental level, when it was accredited in 2007 by
the French National Authority (HAS) to be the official certifying body for all
French health websites.
Misuse of HONcode
A journal article raised a number of problems with the
HONcode logo, indicating that consumers may mistake it as an award or interpret
it as an indicator for assessed information. Other issues with the HONcode logo
were discussed in the Journal of Medical Internet Research, a peer-reviewed
eHealth journal. Websites that are not in compliance with HONcode can continue
to display the logo, as Health On the Net Foundation (HON) has no means of
obligating the offending webmaster to remove the logo. Clicking on that logo
(for verification) will not indicate that the site is out of compliance, as
HONcode only indicates that sites are "undergoing annual review".
Hence, websites that are not in compliance with HONcode may still be displaying
the HONcode logo, calling into question the entire principle of HONcode. Other
problems with the application of the HONcode principles are that HON does not
have a means of verifying many of the principles, such as credentials (medical
or otherwise) as stated on websites displaying the logo, or that copyright or
confidentiality is not violated by webmasters. HONcode relies on the webmaster
for honest representations about compliance with the principles.
In recent times however, HON has developed ways to
counteract the misuse of the HONcode. One of these is the use of an active and
dynamic logo which shows its validity and reflects the site compliance in real
time. In addition, all medical credentials are verified through national
databases of registered medical professionals. HON has always encouraged the
internet community to demand for quality health information and the general
public plays a large role in the policing of the HONcode by HON.
Consumer protection advocate Stephen Barrett is a strong
supporter of HONcode and has made efforts to improve compliance with its rules
and to expose those who misuse it. In a whole "Special to The Washington
Post", extensive coverage of his views on the subject were provided,
including suggested improvements and his criticisms of many named misusers.
In cases of suspected fraudulent websites, or of misuse of
the HONcode, HON advises internet users to alert Quackwatch or HON itself:
"If you come across a healthcare Web site that you believe is either
possibly or blatantly fraudulent and does NOT display the HONcode, please alert
Quackwatch. Of course, if such a site DOES display the HONcode, alert us
immediately."